The boy suffers from Hunters disease, a rare and deadly affliction. A newly-developed medicine has shown positive results, but has yet to be approved by the European Union’s drug administration. The drug was approved by the United States this summer.
Halland County twice denied the boy the trial medicine. Some believed it was because a one year’s subscription to the drug runs to about 4 million kronor. County officials denied making the decision due to the huge cost, saying that it would not pay for the drug before it was approved.
The hospital in Halmstad, near the boy, ordered the drug on Tuesday, reported Göteborgs-Posten.